jueves, 11 de marzo de 2010

Damnificados en albergues en Chile


Esta es una lista de personas aparecidas en albergues de Chile, después del terremoto del 27 de febrero, y el subsecuente maremoto que asotó, entre otras, a la ciudad de Concepción, y la comunidad de Curanipe.

Albergados Pelluhue

1. Sonia Mena Díaz Curanipe
2. Biviano Alarcón Acevedo Curanipe
3. Karen Sanhueza Saez Curanipe
4. Jaime Saez Pérez Curanipe
5. Antonieta Sanhueza Andrades Curanipe
6. Clotilde Saez Pérez Tomè
7. Jazmin Araya Hernández Tomè
8. Antonieta Hormazabal Saez Curanipe
9. Fernando Briones Hormazabal Curanipe
10. Katerin Hormazabal Saez Curanipe
11. Milar Saez Pérez Curanipe
12. Patricia Hormazabal Vera Curanipe
13. Juan Carlos Herrera Saez Curanipe
14. Anyelina Apablaza Santiago
15. Juan Cristobal Hernández Apablaza Santiago
16. Yazna Elena Leal Arcos Curanipe
17. José Leal Fernández Curanipe
18. Marcela Agurto Leal Curanipe
19. Yasna Agurto Leal Curanipe
20. Emilio Agurto Leal Curanipe
21. Rosario Agurto Leal Curanipe
22. Julio Martínez Busto Curanipe
23. Lina Busto Igeras Curanipe
24. Ana María Contreras Busto Curanipe
25. Juan José Leal Contreras Curanipe
26. Francisco Contreras Curanipe
27. Ana Bustos Bustos Curanipe
28. Ilda Muñoz Muñoz Curanipe
29. Ñanco Bodaleo Huemelaf Curanipe
30. Joselin Arias Araneda Curanipe
31. Jean Franco Bodaleo Arias Curanipe
32. Josef Evert Bodaleo Arias Curanipe
33. Consuelo Herrera Molina, de Santiago. Se necesita ubicar a su padre en Santiago Comuna de Cerrillos.

Luis Hernán Herrera Veras cuida a una niña que la salvaron unos surfistas, pero perdio a sus familiares en el maremoto. Está sola en estado de shock.

34. René Bastías Bastías Curanipe
35. Bárbara Natalia Espinoza Bastìas Curanipe
36. Oscar Arias Zúñiga Curanipe
37. Julian Bastias Orellana Curanipe
38. Octavio Orellana Arancibia Curanipe
39. Claudia Quilodrán Canales Curanipe
40. Victor Hormazabal Gutierrez Curanipe
41. Alvaro Hormazabal Quilodrán Curanipe
42. Patricia Hormazabal Quilodrán Curanipe
43. Loreto Cabezas Ayala Curanipe
44. Pamela Suazo Cabezas Curanipe
45. Marco Suazo Muñoz Curanipe
46. Gladys Ayala Concha Curanipe
47. Bernardo Cabeza Turra Curanipe
48. Luis Cabeza Ayala Curanipe
49. Clemira Leal Estuardo Curanipe
50. Katalina Cabezas Leal Curanipe
51. Amelia Concha Suazo Curanipe
52. Macarena Díaz Ramos Constituciòn
53. Marìa Inés Isla Arriagada Constituciòn
54. Fresia Osores Leal Curanipe
55. José Ayala Concha Curanipe
56. Patricio Ayala Osores Curanipe
57. Carlos Ayala Osores Curanipe
58. Alejandro Ayala Osores Curanipe
59. Graciela Pavez Canales Curanipe
60. Rodolfo Ayala Concha Curanipe
61. Cristofer Ayala Concha Curanipe
62. Nicol Ayala Pavez Curanipe
63. Edith Yevenes Fuentes Curanipe
64. Enrique Salas Vegas Curanipe
65. René Salas Yevenes Curanipe
66. Enrique Salas Yevenes Curanipe
67. Adelina Canales Alvear Curanipe
68. Francisco Pavez Canales Curanipe
69. María Cristina Pavez Canales Curanipe
70. Victor Pavez Canales Curanipe
71. Danitza Lopez Pavez Curanipe
72. Carlos Miranda Vasquez Curanipe
73. Sonia Jara Escalona Curanipe
74. Evaristo Muñoz Vàsquez Curanipe
75. Daniel Muñoz Jara Curanipe
76. Lili Soto Orellana Curanipe
77. Tomas Rojas Ayala Curanipe
78. Rodrigo Ayala Soto Curanipe
79. Cristofer Orellana Gutierrez Cauquenes
80. Nataly Ayala Soto Curanipe

Todos están en el alberque de la Sra. Fresia Reyes. Existen más albergues. Los bomberos tienen listas completas. Varios cadáveres están en la iglesia local Se necesitan con urgencia que los ayuden con frazadas, alimentos no perecibles, en especial leche para los niños, y pilas para radios. Este es el ùnico medio por el que se puede obtener noticias.

Carabineros necesitan más dotaciones; se ven camiones del ejército llegando. El camino está cortado a Curanipe. Por lo que hay que irse por el camino viejo a Curanipe desde Cauquenes.

Curanipe no ha desaparecido; el maremoto se llevo toda la costanera, pero el pueblo está en pie. Rumores de que el pueblo ya no está solo causan alarma a sus residentes. Se requiere que de alguna manera se establezca un medio de comunicación, ya sea a traves de una radio (las del Maule por ejemplo) o urgente un antena de radio aficionado. Algo así. Muchos se sienten abandonados, aislados.

Si es posible, se pide compartan la lista con todas las radios; ha sido lo único que ha ayudado a todos los pueblos por allá. La radio ha sido el medio eficiente que llega a todos lados; es increíble la cantidad de radios en Maule y Bio Bio que están transmitiendo en AM y FM, dando noticias a los familiares, organizando las ayudas, inclusive, con denuncias de robos y alzas de precios.

*En Constitución apareció Iván Lara de 8 años. Está solo en esa ciudad. Busca familiares en todo Chile.

*En Constitución apareció Cristian Beas López de 16 años. Es discapacitado y está solo en esa ciudad. Busca familiares en todo Chile.

domingo, 7 de marzo de 2010

Disabilities Week at UC Berkeley (2)


Thursday, March 11, 7 to 9 p.m.
Life, Death, and Social Services

Stephens Room, MLK Student Union

Over the last couple months, activism on Cal campus has reflected the University’s fighting spirit in the face of increasing fees. This panel discussion will draw attention to the additional difficulties that disabled Californians face.

The 2010-2011 California budget calls for massive cuts to social services, including IHSS, Medi-Cal, and SSI, which will impact people with disabilities directly. In this panel, policy experts, program directors, and state decision-makers will be discussing the impact of California's budget crisis on people with disabilities and what this community can do to moving forward.

Friday, March 12, 7 to 9 p.m.
A Place For All: Faith & Community for Persons with Disabilities
Chapel of the Great Commission (1798 Scenic Ave, at Ridge and Le Conte.)

Join the Differently Abled Student Union and the Community Life at the Pacific School of Religion for this insightful documentary on the role of religion in the lives of people with disabilities.

Produced by the Interfaith Broadcasting Commission, A Place for All features interviews with religious leaders and people with disabilities from various faiths. It will be followed by a moderated discussion. Snacks and nonalcoholic drinks will be provided.

Saturday, March 13, 9 a.m to 4 p.m.
3rd Annual Roll 'n' Shoot
Recreational Sports Facility

The final event of the DAW will draw on Cal’s competitive spirit while raising money for the Bay Area Outreach and Recreation Program (BORP). The committee would like to invite people to join this 3-on-3 wheelchair basketball tournament featuring teams from in and around Cal. No experience necessary, just come to experience a sense of adventure and bring a competitive spirit. Registration $250 per team. To sign up, contact Chris Uller at wheelchairbasketballdecal@gmail.com

UC Berkeley is considered by many the birthplace of the disability rights movement, and the students, staff, and faculty of UCBerkeley are committed to continuing that tradition. This is the fourth annual event hosted by the Disabled Students Union, Disabled Students Program, and the Associated Students at the University of California Berkeley.

Through Disability Awareness Week, the students, staff, and faculty of UC Berkeley celebrate Principles of Community, Standards of Excellence, and the spirit of inclusion and diversity by promoting and empowering the contributions of people with disabilities throughout the world.

For disability accommodation, requests and information, please contact Danny Kodmur at (510)643-6456 (voice) or (510)642-6376 (TTY). You can visit Disability Access Services at http://access.berkeley.edu. For general questions email dsu.ucb@gmail.com

Disabilities Week at UC Berkeley (1)


Hoping to spread concepts about disabilities, education matters among students with disabilities in California, civil rights for the disabled, and legal affairs pertaining to disabled people, the University of California at Berkeley will host a weeklong series of events designed to increase awareness about these issues in the community and in the university grounds.

The UC Berkeley Disabilities Awareness Week (DAW) will run from March 8 through March 13.

The events will be held as follow:

Monday, March 8, 7 to 9 p.m.
Converging Minorities
MCC (Heller Lounge), MLK Student Union

The Bridges coalition at UC Berkeley will facilitate a one-hour discussion workshop to explore the unique position of people of color with disabilities in our educational system. Together we will address questions regarding discrimination, barriers, and resources to understand our current situation and work toward a better future.

Monday, March 8, 2010, Doors Open at 7:30 p.m. Show 8:15 p.m.
A Night of Comedy, with Greg Walloch
Pauley Ballroom, MLK Student Union

$7 Student, $12 General, tables of 9 available.Sponsored by The Disabled Students' Union, Queer Straight Alliance, and ASUC SUPERB

New York-based comedian Greg Walloch will be showcased for a night of community and comedy to kick off our full week of events. Greg Walloch, brings his hilarious act to the Pauley ballroom for a real comedy club performance, complete with round tables and a full cash bar.

Walloch has been described as "a hilariously self-mocking queer on crutches" by New York's Village Voice, and is world renowned for his stand-up comedy and monologues on disability and sexuality. More about Greg can be found at his website, www.gregwalloch.com. The show will be followed by an informal workshop on disability and sexuality, hosted by Walloch.

Half of all proceeds from this event will go to Whirlwind Wheelchair International, which is working to send 350 of their RoughRider wheelchairs to victims of the Haiti earthquake.

The RoughRider is specifically designed for people in developing nations, and has unique features that make navigating rough terrain possible. For those in Haiti, this is a necessity, as much of the country is covered in rubble. Additionally, many of those injured in the Jan. 12 earthquake now need wheelchairs, so sending as many as soon as possible is imperative.

Quality, durable wheelchairs are important for newly disabled people in Haiti, and Whirlwind is providing those chairs. For more information on Whirlwind Wheelchair International, visit www.wheelchairsforhaiti.org. The organizers are currently accepting full, and half-table reservations for groups wishing to attend this event.

This situation is perfect for student groups or other parties seeking to stay together during the show. Those interested in booking a table should contact Louise at dsu.ucb@gmail.com. Please include number of student and non-student tickets in your e-mail.

Tuesday, March 9, 7 to 9 p.m.
Sit-Ins and Bus Blockades: Protest methods and accomplishments of the Disability Rights Movement
Stephens Room, MLK Student Union

The Disability Rights Movement featured some of the most innovative and effective protests of the last half-century, from sit-ins to forceful blockades of public transportation. Attend for a presentation and panel discussion on the methods and accomplishments of this historic movement, featuring individuals that participated on the front lines.

Wednesday, March 10, noon to 1 p.m. Thursday, March 11, 2 to 3 p.m.
Guided Tours of James Castle: A Retrospective
Gallery 3, UC Berkeley Art Museum

Born deaf and raised in rural Idaho, James Castle was an artist of remarkable range, subtlety, and graphic skill. This retrospective is the first comprehensive museum exhibition of his drawings, books, and paper constructions. Join a UC Berkeley graduate student for an engaging and ASL-interpreted tour of this singular exhibition, which was voted among the "best of 2009" by Artforum. http://www.bampfa.berkeley.edu/exhibition/castle)

Wednesday, March 10, 7 to 9 p.m.
PTSD: Disability in Today's Society
Stephens Room, MLK Student Union

The Cal Veterans Group will be coming together in a speaker's panel to discuss the nature of Post Traumatic Stress Disorder in today's society. Listen to Cal student veterans discuss their experiences, together with key speakers from the Veterans’ Association, and the medical research field. www.calveterans.org

viernes, 26 de febrero de 2010

Legal justice lies in hands of the slick, rich(2)

A more credible, honest lawyer, who offers free legal advice once a week at a local coffee house in the neighborhood of Highland Park, told me the case was complicated, not because it lacked merit, but because the complexities that surrounded it.

Based in Pasadena, attorney Neil Fraser told me that even though the case could be filed, because in California the law allows medical malpractice discovery three years after a wrong is found, lawyers of Beverly Hills-based Cedars Sinai could, and most likely, will argue that the case lacks merit on the basis of the pre-condition of my brother, and the serious injuries that surrounded the case. They would ask the judge to dismiss the complaint.

Fraser said the Cedars’ lawyers could also argue, and probably successfully, that two years have gone since Ernesto’s passing, and any possible wrongful death finding should have been filed at least one year after his death. Even though I possess all my brother’s medical record while he stayed at Cedars Sinai, a medical expert must study them to ensure there was malpractice, or medical pitfalls in the post-surgical treatment before filing a lawsuit.

Fraser declined to take my brother’s case. However, he advised me to consult another lawyer whom may be willing to work on it.

That’s when I realized that in order for me to levy a legal war against Cedars Sinai, I would have to pay many thousands of dollars to someone willing to work in this thorny legal matter. And depending on the strengths and weaknesses of my case, and the ability of my lawyer to bring all the evidence, and to convince the judge, or a jury, a ruling in my brother’s favor is unsure at best.

I also called David Geffen, another lawyer who works on American with Disabilities cases. His secretary politely explained me his practice does not take medical malpractice cases.

Having explained all these matters, I haven’t quit on the case. I still cling to a flickering flame of hope that someone, out of real professional commitment to reach a small, albeit late victory in the name of the disabled community in Los Angeles, can help me push past the legal challenge Ernesto’s medical case has brought to me.

Because if Ernesto’s matter is not even filed as it should in a court of law, there will be no legal precedent that would help prevent potentially deadly medical situations from happening again in L.A. hospitals. Particularly against the fragile and disabled. And no one would be held accountable for their medical faults.

Legal justice lies in hands of the slick, rich(1)


Opinion
By Alfredo Santana.

After several failed attempts to hire a lawyer who specializes in medical malpractice in relation to my brother’s painful death at Cedars Sinai Medical Center two years ago, I began to realize that justice is in the hands of institutions with deep pocket accounts, and slick defense lawyers.

My brother Ernesto, who passed away on Nov. 2, 2007, after he spend 13 days in the intensive care unit, deserves to have his case studied, and filed in a court for what I think amounts to negligence, and incompetence from his medical team. They couldn’t figure out how to treat a patient with a special condition with which Ernesto lived.

The condition, called Osteogenesis Imperfecta, makes bones brittle, due to lack of calcium caused by a genetic mutation in the DNA. It’s a rare condition, and those who are born with it experience multiple fractures during their lives. When Ernesto suffered his car accident on Oct.16, 2007, he fractured his two legs. The fact that the driver of the Access Paratransit minivan did not install a chest belt on him made the injuries worse.

To appease his broken legs’ pain, Ernesto received several heavy doses of morphine, a drug that is known to cause lungs disease. Ernesto spent at least three days and three nights in the hospital before a specialist surgeon decided to approve his reconstructive legs surgery. During the preliminary studies, Ernesto was administered a test to measure his lungs’ breathing strength.

Unfortunately, Ernesto’s lungs were so weak, that he could not blow two out of three plastic balls out of the bottom of a small device that measures the strength, and ability of the lungs to breath and exhale. Morphine, and the stress caused by the injury, made one lung to collapse. Ernesto had an already reduced rib cage, and the drug worsened his ability to intake oxygen.

I believe the doctors misjudged Ernesto’s ability to overcome the surgery successfully, given the weakness of his lungs. During the surgery, the medical staff rushed to connect a mechanical breather, hoses attached to his nostrils, one running down his esophagus into one lung, the other to the stomach, to literally keep him alive.

After the surgery, my brother remained all the time hooked up to the artificial mechanical breather. At least two attempts to remove the devices out of his chest were made by various resident doctors and nurses, to no avail. They said Ernesto became agitated, and that it was impossible to do it. All the while he was administered intravenous liquids.

I called one law practice, the offices of Michels Watkins, who claim to have some of the best malpractice lawyers in town. Based in Beverly Hills, Michel Watkins seemed to ring a professional, serious possibility. But as soon as I explained the details, and the special condition of my brother, the paralegal who took my data told me she would call me back during the next day, or next week. It’s been several months already, and nobody has returned my request. Another slick law firm that claims to be of help, but does the opposite?

miércoles, 24 de febrero de 2010

Hijos especiales: aprendiendo a volar con autismo

De Rodrigo Romero para su mamá Mónica Iris Romero

Hola, soy Rodrigo, el hijo de Mónica Iris, Se que muchos de ustedes solo miran las fotos de mamá, pero tambien se que muchos les preguntan por mi y mi patología: soy un niño con sindrome autista, soy más lento, "especial" dicen, todo me cuesta un poco más, pero si me hablas despacio y clarito entiendo todo.

Llegue a sus vidas con tan solo ...cinco meses. Yo necesitaba una familia, estaba solo en este mundo, y mis papis no dudaron un instante en hacerme suyo. Les decían que no escucharía y no podía hacer mucho en la vida, y mamá nunca se dio por vencida. Hoy tengo casi 18 años, puedo hablar muy bien, se leer, escribir, manejar la compu y el celu, voy al gym, y nado. Yo desde los tres años soy muy feliz, solo recibi amor. Eso me basto para luchar en la vida. Soy distinto... nada más.

No entiendo a veces como funciona el mundo de los "normales", entonces me "voy al mio". Se que ustedes no entienden esto, a mamá tambien le costó, pero ella si entiende ahora. Y me "desconecto" a veces, y siempre ella esta ahí para cuando yo decido "volver". Me espera con paciencia y todo vuelve a ser como antes otra vez... Muchas veces la oí llorar por las noches. Lloraba de dolor, de impotencia, por frustración, pues solo quiere lo mejor para mi. También la veo sonreir cuando alcanzo logros nuevos. Eso la hace feliz y a mi también.

Hoy tome la decisión de no vivir con ella. Se también que esto la hace llorar por las noches, me extraña...(yo tambien la extraño, pero no se lo digas, eh?)

Me pasan "cosas" que necesito resolver solo. Ella me preparo para esto, y algun día volvere a su lado, pero tengo que estar listo... no es mi tiempo aún. A veces me rio solo y hablo solo también. Mamá me quiere matar cuando lo hago, pero elige reir conmigo y abrazarme fuerte. Es lo que más necesito yo. Aprendi a leer y a usar la compu solito, pero no me se atar los cordones solito... ves? Mi cabeza y mi cuerpo crecen de modo desproporcionado, no soy "normal" dicen... pero quien puede juzgar eso?.. vos lo sos?

Tengo dos perros labradores entrenados y adiestrados para mi patología que acompañan mi crecimiento; MAMONA Y MAMON, asi los llamo yo. Son mis mejores amigos. Mamá dice que soy suyo porque me ama... que más?

sábado, 20 de febrero de 2010

Critican pobre infraestructura para discapacitados en escuelas argentinas.


Infancia Hoy.

En Argentina, cerca del 85 por ciento de los menores de edad con alguna discapacidad motriz que van al colegio abandonan los estudios por la falta de accesibilidad de los edificios. Se calcula que en la ciudad de Buenos Aires, sólo el cinco por ciento de las escuelas privadas están preparadas para recibir adecuadamente a estos niños y, en el caso de las estatales, la cifra asciende al 25 por ciento.

Estos datos se desprenden de un relevamiento hecho por el organismo no lucrativo Acceso YA en el 2006. Si bien no hay disponible una actualización de las cifras, la directora del ONG Evangelina Gálligo explico que la estadística no ha cambiado y que "son muy escasos los colegios que hicieron reformas".

"Desde principio de año reclamamos a través de un pedido de información pública saber cuáles fueron las obras realizadas entre 2005 y 2008 y el presupuesto que se les asignó pero no obtuvimos respuesta, así que la semana pasada presentamos un amparo", dijo Gálligo. "Los derechos de niños con discapacidad estan vulnerados".

Además, en 2007 la organización presentó otra acción reclamando que se cree un plan de accesibilidad. Se espera que en los próximos días se dicte la sentencia.

En el relevamiento realizado sobre cerca de 700 escuelas porteñas, se destaca que la mayoría de las que no cumplen con los requisitos mínimos, son religiosas. "Muchos de estos colegios pertenecen al Arzobispado de Buenos Aires y varios son subsidiados hasta en un 70 por ciento", reflexiono Gálligo.

Evangelina Gálligo cuenta que hacen reclamos en los colegios, pero los chicos no obtienen respuesta y a partir de allí surgen los casos de deserción escolar. Además -destaca- muchos suelen sentirse discriminados y terminan yendo a una escuela esencial, aunque su capacidad intelectual sea como la de cualquier persona sin problemas motrices.

Con respecto al actual gobierno porteño, a cargo de Mauricio Macri, Gálligo ironizo y resalto que los cambios fueron no positivos, al comparar ésta con otras gestiones.

"Entre los compañeros de colegio hay solidaridad, pero lo que falta es la voluntad política para resolver la situación. Hay que reivindicarlos como sujetos de derecho", sentencio.

Pero la construcción de rampas para ingresar no es lo único que se necesita para que los chicos con problemas motrices puedan ir a un colegio normal; debe haber un sistema de transporte equipado correctamente; dentro de las instituciones no deben haber desniveles (y, en tal caso, hay que colocar ascensores), las puertas deben ser lo suficientemente anchas como para permitir el paso de sillas de ruedas, y los baños también deben ser accesibles.